“I am going to die taking care of her, that’s it. This is my new job and that’s where it ends.”
Jackson and his wife, Jocelyne’s journey, spans across 4 decades. When Jocelyne initially got diagnosed with a lesion in her brain, Jackson, like many other caregivers, blames himself for not taking better care of her… since she has always been there for him.
Now she has to adhere to a set routine, whether it be food, bed time or daily activities. Jackson’s part in this is to watch over her like a hawk to ensure that she is really all right and hasn’t randomly passed out. Although he is always with her – everyday after taking her meds, she goes for a walk to a local diner, which is her alone time; giving them both a well deserved break.
Sometimes caregivers feel that they are all alone in this and often compromise on their own safety and well being – Jackson even wears a “ do not resuscitate” medical bracelet because he feels that Jocelyne won’t be able to take care of him if something happened to him. Now, with access to the internet, Jackson has come across many support groups, which he wishes he knew about earlier.
If you can identify with this story, please share it with others who care for someone. The feeling of understanding, not being alone and access to support is what keeps caregivers going.
Source: © 2017 Stories for Caregivers. All rights reserved.
Stories For Caregivers (https://www.storiesforcaregivers.com)
An initiative developed by The Coup Company (http://coupcompany.com/)
Produced By North of Now Films – https://www.northofnow.ca/
Produced with the participation of TELUS Fund – http://www.telusfund.ca