Disease Specific Resources(videos)

“Having a child with down syndrome is like taking the scenic route. You still get where you are going. It may take a little longer, but it will be well worth the trip.” https://www.youtube.com/watch?v=mArnXyJ3HNA&t=464s The Jensens have three children, their youngest daughter, Tory, was diagnosed with Down Syndrome after she was born.  In this video, Tory’s parents talk about how their life changed and what their family life is like ever since Tory entered their lives. They speak about how it’s Read More

“We have people who are struggling all over the place and it is time to quit acting like this is a rare disease and only a few families are giving up their lives, this is everywhere….it’s affecting everyone in every class level, in every age level, and every gender, all demographics across the board.” https://www.youtube.com/watch?v=CcBH077AEm8&feature=youtu.be The video delves into the lives of those caring for loved ones suffering from Alzheimer’s. It talks about the various facets of the disease and Read More

“You came in here doing lots of things and assuming from our conversations, enjoying life, and that really shouldn’t stop. But you’ve got this new challenge and we’re going to be here for you, we’re going to help you wade through this…” https://www.youtube.com/watch?v=jBJ6XccZnPg&feature=emb_logo Beyond the diagnosis of a disease or illness, healthcare practitioners are also required to deliver unpleasant news to their patients sometimes. It becomes important for them to share this news in an effective yet compassionate way. The Read More

“You’re right. I have good days and bad days but it’s always nice when you (grandchildren) visit, and when you give me a little bit of help.”   https://www.youtube.com/watch?v=_QJBVF24cKk&feature=youtu.be In our society, children are usually encouraged to spend as much time as possible with grandparents – whether we live in a joint family or a nuclear family. Sometimes, it’s complicated when an older person is diagnosed with dementia due to the memory loss and confusion. Explaining this condition to kids Read More