Support Group Meeting in collaboration with EN1 – Summary Report

support group meeting in collaboration with EN1 - summary report

We conducted a support group meeting in collaboration with EN1 Neuro for the caregivers of children suffering from various neurological conditions. The meeting was well attended and we gave them introduction to the purpose behind starting a support group meeting. They were also made to understand benefits of support group meetings.

Being a parent of a child with life-limiting, life-long condition can seem like a long lonely journey. As parents they are stressed, anxious and fearful for the child. They constantly struggle to find solutions through medical treatment which is often only one part of the overall challenge. They live in fear for their “not-so-normal” child with questions like ‘Who will look after our child, if not us? How will he or she survive? What will happen if anything goes wrong with us?’. We, at Caregiver Saathi, create a platform and spaces like support groups so that they feel supported and cared for.

Caregiver Saathi has designed a proprietary module based self-care educational program for the primary caregivers, a copyright of Caregiver Saathi. In the meeting, caregivers were given an introduction of the program as well as an overview of elements of well-being.

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